Things You Didn’t Know About Lupus…

Posted: October 1, 2011 in Specifically Lupus
Tags: , , , , , , , , , , , , , , , , , , , ,

Did you Know?

More people have Lupus than have AIDS, cerebral palsy, multiple sclerosis and cystic fibrosis combined! (But I bet you’ve heard of them.)

Lupus more commonly affects women of Indo-asian, Afro-carribean and Chinese origin than any other group. UK statistics show that 1 in 625 Afro-Carribean women will develop lupus. 1 in 5,000 white women will develop it. (Based on age range, gender, condition severity, etc. I am approximately 1 in 1,000,000 – i.e. in the UK there are only 6 others like me)

80% of Lupus patients have or develop some form of neuropsychiatric form of the disease.
50% develop some form of pulmonary disease
40% develop some form of Cardiac disease
33% will have or develop kidney involvement.

With the exception of the newly released Benlysta (that is not suitable for a lot of lupus patients) there has been no drugs released specifically for the treatment of Lupus. The main drug to treat Lupus is Plaquenil, an anti-malaria drug.

Plaquenil is a drug that over a prolonged period can cause retinal toxicity.

Other drugs used to treat Lupus can be just as unfriendly – Prednisolone (can lead to weakening of the bones, diabetes, and severe insomnia), with more progressive Lupus drugs such as diclofenac (an anti-inflamatory that can cause kidney/heart failure), Cocodomol (that can lead to drug tolerance, chemical dependency, and addiction) and strong immune suppressing drugs are used. Sometimes Chemotherapy is used to “reset” the immune system but this will usually result in repeated treatments and is unlikely to completely rid the person of Lupus.

There is no cure for Lupus!

Songs relating to Lupus

Dido – Grafton Street

The Beatles – Lucy in the Sky With Diamonds

Julian Lennon – Lucy (Spot the purple awareness wristband in the video)

Rob Thomas – Her Diamonds

Doc Ish (D12/Eminem’s Producer) – First Treatment (2010 album)
[Gutted – there’s nothing on you tube for the video I wanted to put up 😦 ]

Notable Cases

Michael Jackson suffered from both SLE and vitiligo. Diagnosed in 1986, and confirmed by his dermatologist, Dr. Arnold Klein, who presented legal documents during court depositions.
Lady Gaga has been tested borderline positive for SLE, however she claims not to be affected by the symptoms yet. The revelations caused considerable dismay amongst her fans, leading to Gaga herself addressing the matter in an interview with Larry King, saying she hopes to avoid symptoms by maintaining a healthy lifestyle.
Louisa May Alcott, American author best known for her novel Little Women, has been suggested to have had SLE.
Inday Ba (also known as N’Deaye Ba), a Swedish-born actress who died from SLE complications at age 32.
Donald Byrne, American chess player who died from SLE complications in 1976.
Caroline Dorough-Cochran, sister of Howie D. of the Backstreet Boys, died of SLE complications. He founded the Dorough Lupus Foundation in her memory.
J Dilla (also known as Jay Dee), a hip-hop producer and beat maker who died of SLE complications in 2006.
Lauren Shuler Donner, American movie producer.
Hugh Gaitskell, British politician who died of SLE complications in 1963 aged 56.
Seal, British musician (discoid lupus)

Sophie Howard, British glamour model
Teddi King, American singer, died of SLE complications in 1977.
Charles Kuralt, former anchor of CBS Sunday Morning, died of SLE complications in 1997.
Ferdinand Marcos, former Philippine president, died of SLE complications in 1989.
Mary Elizabeth McDonough, American actress; blames her SLE on leaky silicone breast implants.
Flannery O’Connor, American fiction writer who died of SLE complications in 1964.
Elaine Paige, British actress and singer
Tim Raines, former major league baseball player
Mercedes Scelba-Shorte, America’s Next Top Model Season Two runner-up and model.
Ray Walston, character actor who died of SLE complications in 2001 after a six-year battle with the disease.
Michael Wayne, Hollywood director, and producer, part owner of Batjac Productions, son of legendary actor John Wayne, died of heart failure resulting from SLE complications in 2003.
Kéllé Bryan, member of 90s British pop group Eternal, became ill with lupus in 1999.
Toni Braxton, American R&B singer, songwriter and actress.

  1. Wonderfully informative blog post!! And I didn’t skip any of the writing! 😉 Thanks for posting this to my Lupie page on facebook!!

  2. […] Things You Didn’t Know About Lupus… […]

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